We were called back after our 19 week ultrasound because apparently some of our images were “unclear.” I was assured that nothing was out of the ordinary and the baby was developing normally, but she was in an unclear position and the ultrasound technician could not properly capture a few of the images of baby’s liver and lips. I tried not to have anxiety about this because I was told that the perinatologist (or as my DH calls him the “reader” of the ultrasounds) was a perfectionist, and simply would not give his okay of the images until they were crystal clear to his expectations.
Fast forward 4 wks and we were in for a full ultrasound once more to get these unclear images resolved and generally check on baby Summer. These ultrasounds are incredibly long as many of you may know, and as a very pregnant woman they are somewhat uncomfortable, especially when the ultrasound technician says nothing to you for the full almost hour. After the scan I went home and tried not to worry, after all I had a toddler to take care of.
I immediately called them back but I couldn’t reach anyone. Soon they returned my call and I answered it. My husband was nearby listening to my tone. The woman on the other side of the phone was someone from my OB’s office that I was unfamiliar with. She said, “I am calling to start scheduling your once a week AFI’s and twice weekly NST’s.” I paused for a moment and then said, “I haven’t heard anything about any of this.” Knowing this was bad, I stood up and let my heart fall to the floor. I walked out of earshot of my husband because I didn’t want to upset him.
Now, I just have to say my OB’s office really is amazing and full of great women. They are people you want to be there for you through pregnancy. But I thought they handled this particular call horribly. It must have been an off day.
I walked outside and the woman on the line said, “Oh… would you like to speak with your doctor?”
I replied, “Yes of course.”
But my doctor wasn’t around so another nurse practitioner got on the phone and said, “It appears your baby’s growth is slowing so we will have to monitor you closely throughout the rest of your pregnancy.”
At this point I guess my OB was finally within range and they got her on the phone. My conversation with her was a blur, but through tears I asked her things like, “Is the baby okay? Is this common?”
She told me that the scan showed the baby was healthy, but that her abdomen was measuring two weeks behind her head. I had no idea what that meant or how serious it was. I asked her how concerned she was, and she assured me that this happened sometimes and that we would just monitor the pregnancy more closely through twice weekly NST’s to check the baby’s heart rate and AFI’s to monitor my amniotic fluid. She said I was a “victim of statistics.” Our number were just off in regard to growth charts and scientific statistics.
Even if this was not a grave diagnosis, I still wondered what I was up against. What was going wrong, what would happen to my little girl and how this pregnancy and delivery would go. My husband and I were both shaken, but we tried to find the positive light of our second little girl and focus on not being stressed for the sake of my body and little Summer. I consciously put the worry in a box, deep inside my heart and relied on faith that somehow everything was going to work out.
I had never heard of the condition I had — IUGR (Intrauterine Growth Restriction) — before. But this is the diagnosis you get when measurements such as the abdomen measurement are not consistent with the gestational age of the baby. My husband and I spent the next weeks scouring the internet and our baby books reading all we could on the subject of IUGR. We read all we could find. I even read obscure medical journals published on the subject, and I still didn’t get the kind of answers that were definitive in any way. Part of the reason I am writing this post is because we did not find too much that fit our case. I want to help all of you mommas out there that ever come up against this diagnosis with what we found out.
There are two types of IUGR: symmetrical and asymmetrical. Ours was considered asymmetrical because Summer’s head was measuring on time but her abdomen was measuring two weeks behind. Symmetrical IUGR is even more serious and involves the entire body measuring behind in gestational growth as compared to age. Typically if there is an IUGR problem, the baby will have a low birth weight which could lead to complications when born; other times the pregnancy is induced in order to deliver the baby before the placenta fully fails.
There are a few reasons why this could happen in a pregnancy, most of which involve an unhealthy mother (ie: high blood pressure, diabetes, substance abuse, malnutrition, anemia, infections, etc.). I didn’t fit any of these categories, and I considered myself extremely healthy so I couldn’t understand why my body wasn’t functioning properly. The only thing that my doctors could do was monitor the functioning of my placenta to see if it was it failing in some way and whether the baby was under stress.
We began the twice weekly NST’s and AFI’s to monitor baby Summer’s heart rate, check the functioning of the placenta and the amount of amniotic fluid. This was not easy, as it meant a lot of early morning doctor’s appointments with my toddler Gemma, and a lot of waiting and praying. Twice weekly, I would get hooked up to a monitor and Gemma and I would draw pictures, she’d eat snacks and we would play games on my tablet to pass the time. She was such a trooper. This went on for 10 weeks.
One of the great things was, amidst this frightening period of time, we were given so many ultrasounds that I knew exactly what little Summer looked like as she was growing in my belly. It was amazing to see her every week and it made me calm to be able to check on her. I knew that even if she was very small, there would be no limit on the love her father, sister and I would give her. And even if she developed health issues or we had a complicated delivery, I could never love her less. I would always fight for her so I was at peace. I needed to be peaceful for her.
At 34 weeks of pregnancy my ultrasound came back with results that allowed Summer to be considered “caught up” in growth and all of the testing was discontinued.
I will never know what happened. While surfing forum threads on IUGR, I read that some babies simply appeared to catch up. I am left questioning if this is just how she grew, in her specific way. Did Gemma grow this way as well, but we just happened to catch it in Summer because we were called back to get clearer images?
Summer was actually not delivered early. In fact she was 9 days late and I was induced with her. She also came out 9lbs 9oz! She is big, and chubby and healthy. She is such a little blessing but I’ll never forget this pregnancy and how lucky I am to have her.
Did you have any unexpected pregnancy complications?
kiwi / 511 posts
I had a similar poor handling incident with my OB’s office. I had my original appointment and ultrasound and then left the country for a month. I arrive home to find a letter with a date and time for genetic counseling. I was all WTF. Needless to say I was beyond pissed and had a few choice words with the head of the practice and he agreed it was handled poorly. It was just a standard thing that they did with all patients of “advanced maternal age” god I hate that term. Anywho….once it was explained it really wasn’t an issue however the letter all alone with the words “genetic counseling” is pretty loaded and should not have been introduced without context.
So I had my ultrasound and there was a small issue and it resulted in a trip into Boston for another read, another chat with a geneticist (who was horrible and quite frankly she left me with the impression that I should abort my baby. That is probably not what she meant but that is the vibe she gave). And then an ultra sound every 4 weeks to “monitor growth” with a doctor that again had the bedside manner of House.
The whole experience really did leave a stain on my pregnancy and I was just left feeling cheated. My LO is 17 months old and I am still mad, but mostly just sad about it. I was treated as a “high risk” even though I don’t think I really was and that is just un-nerving.
apple seed / 1 posts
Well, I assume my wife and I were “lucky” in finding out about her IUGR the day before they decided to induce her and didn’t have to go through weeks of testing like Mrs. Palette. But those 24 hours were definitely not fun emotionally as she too did not fit any of the “common causes” for IUGR.
It was her 39 week check-up and our baby was still very high. So her OB decided to do an ultrasound (we hadn’t had one since 20 weeks) which revealed our daughter was “small”. The monitor said GA was 36 weeks.
We went to “the ultrasound guru” the next day (his screen said 38 weeks) to get a better picture and he basically said, “your fluid is low, baby will do better outside than inside” and that was that.
She was induced that night (Friday) and Sunday afternoon our 5lb 7oz girl was born naturally, and she’s doing great almost a month later.
wonderful olive / 19353 posts
This was me almost to the T! DS was measuring on schedule at my anatomy scan (18 weeks). At my 35 week ultrasound to determine the baby’s position, DS’s abdomen and legs were measuring 3 weeks behind. His head was on schedule. My amniotic fluid level was also low (7.5 vs the 11+). My OB immediately hooked me up to the NST machine while she called the high risk doctor as she was going to admit me to the hospital to get an IV inserted to get at least 2 bags of fluid in me. Hubby and I were scared sh*tless. We didn’t have hospital bags packed, the nursery was still a full on office, etc. We were not “ready” to have this baby yet!
The high risk doctor told my OB that I should be put on bed rest with orders to drink liquid as if I were breathing, and to come see her the next day for further evaluations.
I went to see the high risk doctor the next day, and my fluid levels were still low, and DS was measuring even smaller than what the tech measured at the OB office! Fortunately, the ultrasound also revealed DS’s organs (bladder, kidney, etc) were functioning just fine.
I was hooked up to the NST monitor and sent for ultrasounds every other day. At 36 weeks, nothing had changed and my OB scheduled me for an induction later that week when I would be 37 weeks exactly. DS was born 4lbs 13oz, and came out wailing (they were worried his lungs weren’t fully developed yet). Albeit small, he was perfectly healthy. My placenta was sent off to pathology for examination. Results: it’s was deteriorating faster than it should have and had began to have calcium build up on it.
OB said there was nothing I could have done to cause this; and I would be monitored more closely for subsequent pregnancies.
guest
I had something very similar happen to me while I was pregnant with my youngest daughter only I was told her stomach was measuring too large and was sent to a specialist. I’ll never forget how worried I was waiting those 2 weeks (for my insurance to approve) for my appointment – googling everything on the topic and preparing for the worst.
After an hour long ultrasound with a high risk Dr. in the room I was told that he couldn’t find anything else that caused him concern and that he was confident her slightly larger than normal stomach was just that. She was born full term a healthy and happy 7 pounds 7 oz.
I do wonder if my older daughter may have had the same thing but it wasn’t caught on the ultrasound? Has technology advanced so much in 3 years that we are now picking up on small details that weren’t as clear before? Maybe we are just a family with large tummies =)
pear / 1698 posts
I also experienced IUGR, my placenta was already a stage 3 to 4 by my 32 week ultrasound. At 34 weeks the baby’s measurements were in the 12th percentile, and i was monitored weekly using biophysical profiles. At 38 weeks I insisted on another growth ultrasound and the baby had dropped to the 3rd percentile. I was induced that day. My baby was born perfectly healthy at 5lbs 2 oz. She did not need any extra monitoring at all, even though her weight dropped to 4 lbs 11 oz when we took her home. The pathology report showed calcifications and infarctions on my placenta. I am a healthy person, and have never smoked, drank, or used drugs. The doctors weren’t sure what happened, but I will have to be monitored more closely my next pregnancy. Though I wonder if its genetic since my mom swears I was 2 weeks late and only weighed 6 lbs 2 oz. She had never had an ultrasound though.
My LO is almost a year old and was 66% for height and 22% for weight which seems right on target looking at our genes. So I would say she’s caught up on growth!
pear / 1531 posts
Thanks for these stories, ladies. I am high risk for IUGR (extremely low PAPP-A and high AFP) and am thankful that my baby is measuring well so far at 23 weeks. Your stories give me courage if things take a turn for the worse (hopefully later rather than sooner).
admin / watermelon / 14210 posts
I’d never heard of this so thanks so much for sharing your story! I’m sure it will be helpful to other women out there who are going through the same thing.
blogger / kiwi / 675 posts
@LemonLong: My first daughter was 8 days late and 7lbs 11oz, I sort of wonder if this is just how our babies grow, along the lines of what your mom experienced. What are the placenta stages? Going through all of this monitoring, I never heard about that….
blogger / kiwi / 675 posts
@Mrs. Bee: I’m glad to share this because I hadn’t heard of it either until we were thrown into it and I was so scared! I hope some ladies will find some comfort in our story even though it was pretty hard when no one could tell us much… all we could do was wait and watch. helpless.
pear / 1698 posts
@Mrs. Palette: oops, I was remembering wrong, my placenta was a grade 3 (the scale only goes to 3!) It’s basically a grading scale for the amount of calcifications they can see on the placenta. My placenta was aging faster than it should have been. A grade 3 is what they would expect to see at 39 weeks or later but I was only 32 weeks.
blogger / nectarine / 2600 posts
Thank you for this post. I have never heard of this either but it is interesting and something Ill file away in case I ever encounter this in my own pregnancies or that of friends. Im glad Summer came out perfectly though.
guest
My girl was consistently measuring 2 weeks behind her due date but I was repeatedly told that it’s fine, my husband and I are small so clearly our daughter would be on the lower end of the chart. I was diagnosed with IUGR only after I was sent in for a 36W csection because Ruby wasn’t growing and stopped moving in utero. She was 4 lb 6 oz when she was born and is thankfully perfectly healthy but I can’t fathom why this didn’t occur to anyone in my medical practice.
apricot / 347 posts
So pleased that it worked out for the best and little Summer was born a healthy chubby little baby. We had IUGR in our first pregnancy as a result of oligohydramnios (low amniotic fluid). They found at 16 weeks that our fluid was low and sent us to a MFM to be checked. Worst.appointment.ever. The doctor looked at our baby and said, well I cant find what’s wrong but you’re probably going to have to terminate this pregnancy b/c your baby boy (we hadn’t known the gender before) isn’t viable. And then made us wait 3 weeks to see if the fluid levels improved b/c according to the doctor, ‘what difference does it make if we abort now or later’. It was hell. Our story did not have a happy ending, so I’m so glad that all of yours did!
blogger / kiwi / 675 posts
@bunnymommy: I’m so sorry. That is truly heartbreaking and what a cold, insensitive doctor.
pea / 6 posts
This is a path we went down as well. At 20 weeks I was scheduled for weekly ultrasounds for the remainder of the pregnancy. Basically, they were just watching for the moment where either her growth slowed or my amniotic fluid volume dropped. Both of these are signs of placental insufficiency which is more common as we age. Once it was clear that she was not getting enough nourishment from the placenta to grow, I would be induced. Thankfully, my little mouse clung to her 10th %ile curve and it wasn’t until the scan on my due date that my fluid levels were found to be inadequate. I was induced that day and I had a great delivery. She was 6lbs. 4 oz. We ended up in the NICU for a few days for some unrelated issues but the IUGR bugaboos never materialized. The constant scanning for 20 weeks was a bit stressful but my OB was infectiously serene and in the end I was glad that we were able to keep such close track of her development.
blogger / pear / 1964 posts
We went through something similar — I was on bed rest for two weeks late in my pregnancy because they suspected symmetrical IUGR. The Trikester seemed to just stop growing somewhere between 34 and 36 weeks. Ultimately, after tons of scans and lots of monitoring, they decided he was just a small baby. He was born almost two weeks late at 5lbs 14oz and 22 inches. He was perfectly healthy, just skinny. His build hasn’t changed — he’s still a string bean that’s always on the verge of falling off the chart. It’s a good doctor’s visit when his weight surpasses the 5th percentile.
blogger / pineapple / 12381 posts
My placenta was crap, so I had tons of monitoring for IUGR too. I went to term but had a tiny babe. She caught up once she was out of my horrible baby house and in the real world.
guest
Thank you so much for this post! It brought tears to my eyes. We were just diagnosed with IUGR at 29 weeks. My baby boy wasn’t moving like I expected him to, so I went to the ER to have them establish a heart beat to make sure he was still kicking. His heart beat was established just fine, but with two sonograms, his movements were described as “sluggish.” After being transferred to a higher level hospital and admitted for two days, undergoing four additional sonograms and biophysical exams for the baby, and being constantly monitored for preeclampsia, the doctors determined that the baby was moving just fine. But he was tiny – diagnosed in the 3 percentile. I started researching IUGR when I got home, and my heart started sinking. We start our twice-weekly monitoring tomorrow, and I am hoping for the best. Finding your post has been a blessing! I feel uplifted, hopeful, encouraged. I was really touched by your line, “I would always fight for her.” Just today, I said to myself, “I want my baby boy to know that I will always fight for him.” The tears are flowing again now as I type this. So, thank you again, and to everyone who has responded with their testimonials as well. You have blessed and encouraged me today. Believing for 40 weeks and a healthy, thriving, kicking, fighting baby!
blogger / kiwi / 675 posts
@THANKFUL FOR YOU!: I’m so glad I was able to bring you some hope and encouragement! I will be praying for you and your sweet angel. Being hopeful helps so much I think, I also learned to take it day by day and that got me through a lot of testing/monitoring and helped keep me relaxed. Each appointment was a check off my calendar. Hang in there & please feel free to contact me if you need to talk or have any questions!
guest
Thank you so much for this post. Our LO was diagnosed as asymmetrical IUGR yesterday. His head and limbs are completely normal but his poor little belly is only at the 4th percentile
I’m currently 33weeks, so the plan forward is twice weekly NSTs and 2 more ultrasounds before 37 weeks. If all goes well we will likely be induced right at 37 weeks to get him out and eating. Fingers crossed he’s ok in there. Sure does kick up a storm–so hoping he is just a mighty, fesity little bird
guest
It was discovered at my 20 week us that I had severely low amniotic fluid and my baby was measuring 2 weeks behind. At first I was not worried as 2 weeks didnt seem like a big deal and low fluid could have been timing. I was referred to the hr unit and that was when panic set in. She told us the baby would not survive and we could abort or wait it out. Aborting was not an option, so i was scheduled for weekly appointments to monitor and met with genetics which was a terrible experience. Anyway, 2 months later the fluid level was normal, i did not increase my water intake, I talked to her constantly and told her she needed to grow and fix her head and bowel as these were issues showing on her us’s, and i did lots of positive thinking. Long story short I was induced at 37 weeks 5 days and my beautiful baby was born at 2 lb 14 oz. She is a perfectly healthy rolling 4 month old 8 lb baby! We were soo blessed that our story ended happy. She is a very strong baby and fought hard to get here. I did have bad days/moments but then would switch my thoughts to be positive as I owed it to her and my son. I hope everyone can have a happy ending like we did.
guest
Your story gives me hope! I’ve had two previous SGA babies and am currently pregnant with my 4th, and awaiting a potential diagnosis of IUGR. We had a growth scan last week that revealed baby is under the 10th centile and currently around 4.5 weeks behind what is deemed normal, weighing 2;b something at 30 weeks. I am terrified at what might happen, having been told out of the blue that we may have to deliver at 34 weeks. That is only 3 weeks away! I have also had my heart set on a VBA3C which is now looking unlikely too. I am trying to prepare for the worst so that anything else can be a pleasant surprise, so reading stories like yours is a real inspiration. Thank you for sharing and congratulations on such a beautiful girl x x x x
guest
Your story is almost identical with mine. We are 30 weeks and are beginning nst’s twice weekly. Like summer, her tummy is measuring behind…and like you i consider myself healthy. Hoping or little love (also a girl) will catch up and be healthy. This is a scary time, thank you for sharing.
guest
I am 31 weeks with my second daughter. On August 26th I had a ultrasound to check on my daughters grouth, I was 28 weeks then. The OB group I go to has 4 different ladies I see during my pregnancy. At the ultrasound the tech said everything looked good but my daughter was measuring a week behind. The next day the OB that ordered the ultrasound had her nurse call me. She said “She is just measuring a week behind and everything looks good with her fluid. She is 2 pounds 4 oz, but we want to do a level 2 ultrasound to get a better look at her, but everything is okay.” I was told that she would call me back with times and dates I could go to the ultrasound as it is an hour away, she ended up calling me back and giving me a date that I couldn’t make so I called back and they were closed. She called back the next day and told me she would call
me back that day with another date and time but never ended up calling me back. I went to my OB appointment on September 10th, and a different OB than the one that set up the ultrasound on the 26th was my ob that day. This ob asked if I had went to the ultrasound the day before and I said I wasn’t even aware I had one then. She continues on to say this ultrasound is really important because your baby might not be getting enough oxygen or blood to her body because she is grouth restricted and is in the 3rd percentile. I was in shock. how could one person tell me she was fine then this other one just tell me the complete opposite? She said this ultrasound is going to determine if they will take her early or just monitor me more. She also said that my baby could die. Then went on to say the ultrasound could have been done wrong or im just having a small baby. I go on Tuesday for the ultrasound.
I’m just so scared. I was thinking she was fine but then she tells me that and now here I am always making sure my baby is moving. I can’t shake the feeling that this is my fault somehow. I started out both of my pregnancies at 110 pounds. I put on 25 with my first daughter and with this girl I’ve gained 15 so far. I just feel so crappy because I thought everything was okay when it’s really not okay. I have no one to talk to about it except for my bestfriend who lives in lousiana and people in the group’s I’m in on Facebook. I’m just scared to death something is going to happen to her. I have a big fear of being drugged up so I’m so scared of having a c section because with my first I had a natural birth, that’s what I wanted to do with this baby as well but I’m not sure if that will happen now.