I would like to preface this post with a quick fact: I love dairy. It’s yummy and it’s something I used to eat a lot. Ice cream, cheese, milk, yogurt, butter… it all sounded good to me. Now, however, I eat zero dairy. It’s a sad fact but surprisingly one that has been monumental in changing my diet dramatically. Was this a decision I came to on my own? Not quite. Unfortunately it took Little Deer having MSPI to get us to this point, but let’s back up a bit…
Little Deer was born at the end of December 2012. By the time Mr. Deer deployed two weeks later, I already had a suspicion that she was sensitive to certain foods in my diet. Neither Mr. Deer nor I have any food allergies though, so it wasn’t something I was overly concerned about. One night, in a sleep-deprived act of desperation, I ordered a small Domino’s pizza and ate the entire thing. Not my proudest moment. The next morning LD was spitting up constantly. After each nursing session I think she spit up a good four to five times. And not just a little smear you could wipe with a burp cloth; I’m talking cottage cheese people (gross).
Initially I thought she was just a little sensitive to dairy. I knew that lots of people don’t process dairy very well, so that made sense to me. I decided to cut down on my dairy intake, though I wasn’t feeling ready to totally eliminate it. Being essentially a single mom to a newborn left me with little brain power to think about meal planning and preparation, so the idea of cutting out every little hint of dairy seemed daunting. I decided to start by getting the big dairy items out first. I switched to almond milk for my morning cereal and emptied the fridge of any cheese, yogurt, or butter. I still had creamy dressings on occasion and didn’t worry about hidden dairy in desserts, but that was about it. Her symptoms did get better, but she was definitely still a very spitty baby.
We continued on with breastfeeding and my limited dairy diet, but I still felt like something wasn’t quite right. I brought it up with our pediatrician at LD’s two month appointment, and she said she was probably just a spitty baby and not to worry since she was growing well and otherwise wasn’t too fussy. Around the three month mark, after another dairy binge (I blame Pinterest and the delicious mason jar strawberry shortcake recipe I pinned), LD had a super spit-up fest, so I got to googling. Within minutes I came across MSPI, or Milk Soy Protein Intolerance. I knew right away that this was our answer: Little Deer had MSPI. I never really understood it until I became a mom myself, but a mother’s instinct is a real thing and something to be trusted. And my mother’s instinct screamed she has MSPI! It just all made sense.
So what is MSPI? It means that LD’s body isn’t able to properly digest the proteins in cow’s milk (and soy too, though we didn’t realize that right away). It’s not a true allergy and is different than being lactose intolerant. Symptoms can include excessive crying, congestion, reflux, gas, mucousy stools, rash, and difficulty sleeping among other things. MSPI is usually diagnosed by the baby’s symptoms, which can be tricky since they can resemble so many different things, including colic, reflux, etc. There is no cure for MSPI, but most children usually outgrow it by toddlerhood. In terms of LD’s symptoms, she had always had very mucousy stools. This hadn’t concerned me, though in hindsight I wish I had realized that they weren’t normal. Like I mentioned, she was spitting up excessively. She was also always very congested; we used our Nosefrida pretty much daily. Though not very fussy, she also wasn’t the best sleeper which could have also been attributed to the MSPI.
A few days after the strawberry shortcake incident, I was changing Little Deer’s diaper when I noticed a small streak of blood in it. It was then that I was absolutely positive she had MSPI. I called her pediatrician, and after going in and meeting with her she agreed with me. From that day on I have been 100% dairy-free. Within about two weeks the mucous cleared from her stools. Not only that, she went from pooping about four times a day to once every five days or so. That was a big change! I hadn’t realized that her poor gut was so irritated and that was why she was having such frequent stools. Her congestion also got much better too, and the spitting up lessened quite a bit.
Though she was doing a lot better overall, occasionally I would notice these “flare-ups” of spitting up and congestion. Sometimes her poor little bottom would get really red where it had come in contact with her stool, no matter how quickly I changed her. I knew something I was eating must have still been bothering her. I had read that about half of infants and children that have a protein intolerance to dairy also have an issue with soy, but since I hadn’t noticed any backlash after I ate soy previously, I decided not to eliminate it (in hindsight I now realize that you don’t typically ingest large quantities of soy like you do dairy, so it would have been hard to tell). It was one thing to eliminate dairy, but to eliminate soy meant that I would give up processed foods and all of the dairy-free treats I had found (read: Oreos). Crackers, chips, cereals… no more. That seemed so scary! But I was committed, and a few weeks after I was dairy-free, I was soy-free too. Some MSPI mamas are able to just eliminate soy proteins, but I found that LD is also sensitive to soybean oil and soy lecithin, so anything to do with soy was out for us. And that was that!
Seeing that Little Deer was finally feeling better definitely kept my stamina up and helped me stick to the dairy/soy elimination diet. Was it extremely difficult? Yes. Dairy and soy seems to be in everything. And I seriously MISSED dessert, pretty much on a daily basis. I think many moms who have been on this MSPI journey question if using formula is the best option for them. Several people have told me to not worry about it and to just give LD formula. We didn’t do that for several reasons. Firstly, I am a firm believer in the benefits of breast milk, and I had worked too hard getting the hang of breastfeeding to give up. Secondly, Little Deer would not take a bottle to save her life, so that was really not an option for us. And finally, the cost of special formula for her would be so high, I just couldn’t justify it. I understand that formula may be the best option for some, especially for those whose babies have worse symptoms and possible other allergies that are tough to identify. I have no judgement towards those that needed to make that decision. We as moms need to do what’s best not only for our babies, but for our health and sanity too. What was best for us was eliminating dairy and soy, and sticking with breastfeeding.
When she first got this diagnosis I looked at all of this as a burden and a challenge I was going to have to conquer. Now though, I’m surprised by how much my thoughts have changed. Yes I still miss dairy, but this has now become a way of life. After doing some research I’m pretty sure that as a family we will have very little to no dairy in our lives in the future (even if she outgrows it). I’m convinced that although it’s yummy, humans do not need cow’s milk as a part of our diet. I believe soy has its lists of potential issues too. Not to mention that the foods that usually have dairy and soy in them are often sugary, unhealthy, and highly processed foods. Getting away from those foods has forced me to cook, learn new recipes, meal plan, and try new and different foods. Little Deer’s MSPI kickstarted us into really taking a long hard look at our diet. With our reevaluation of what we eat has come some big changes, and I think that LD’s MSPI, that I had thought was so terrible, has really turned out to be a blessing in disguise.
Prunes sure are yummy!
So yes, Little Deer and I have been rocking the MSPI lifestyle now for about six months, phew! Thanks for reading about our journey so far. I’m planning to write more about how we’re eating now (I’m sure you’ve heard of the paleo craze? Yup, I’m on board!) as well as our experience with the Whole30 challenge. Not to mention I’ve come across some awesome recipes that I’ve tried and love that are dairy/soy-free and delicious. I hope to share a little more about the research I’ve come across regarding dairy and soy in our diets.
For any of those new to MSPI please don’t be discouraged! It is hard but it is do-able for sure. If you have a feeling that your baby may be sensitive to something in your diet, don’t be afraid to speak up and talk with your pediatrician. Follow your gut and eliminate a few foods if you think that’s necessary. When we were getting started I found a few sites to be very helpful. Here are those resources:
- Mrs. Jacks post: This is truly the first thing I read about MSPI, and it served as my introduction to Hellobee and its wonderful resources. Mrs. Jacks’ post has a lot of great information and links too.
- MSPI printout: This is a family education handout from Children’s Healthcare of Atlanta. It does a great job of talking about the basics and listing foods you should avoid.
- MSPI Mama: This is a great website started by another MSPI mama. This specific link takes you to her list of web resources. There is a TON of great information on this page as well as on her main site (recipes too!).
* * * * *
MSPI mamas, how has your journey been? Are there any other resources or sites you recommend?
Milk soy protein intolerance (MSPI) part 3 of 3
1. Beyond colic: milk/soy protein intolerance by Mrs. Jacks2. Elimination Diet Adventures by Mrs. Superhero
3. Our Journey with Milk/Soy Protein Intolerance (MSPI) by Mrs. Deer
kiwi / 542 posts
Thank you! Best timing ever!! I’ve just started strict MSPI diet (5 days in) to work out f that’s what my son has.. He’s had mucousy green stool for a month and bloody stool for 2 weeks. However, he has an amazing temperament, very content. Also the blood only started at 3 months and I ate a lot of dairy since he was born… I’m uncertain if it is MSPI. So confused… If it is, I’ve no problem staying on the diet for him. I love breastfeeding too much
guest
Thanks for sharing your story and resources! So great to hear about another mom eliminating dairy to help her little one! We suspected our daughter had a dairy intolerance when she would cry and cry for no obvious reason, was still waking numerous times a night at 2 months old, had mucousy green stools, and a rash on her face. I was breastfeeding her and eliminated all the obvious sources of dairy from my diet. Within three days, her green stools and rash cleared up! The night wakings and crying decreased, and I was convinced! I became really strict at checking all the ingredients for dairy (like in breads even!) and totally eliminated all dairy for the next 8 months until I finished breastfeeding. I’m back to eating dairy, but my daughter is now 19 months and still intolerant so we’re using Nutramigen formula as a milk substitute. I’m hoping she grows out of it soon
pomegranate / 3053 posts
My oldest (now almost 4.5) also had soy and dairy protein allergies from week 8 until he was about 15 months old. He broke out in eczema head-to-toe and also had quite a few bloody stools. After seeing his ped, allergist, and a GI specialist, they all concluded he had those protein allergies. They didn’t officially diagnose him to having MSPI but that’s what it was. I cut it ALL out…even soy sauce! It was tough at first but after a while I got used to reading labels and you’d be surprised at how accommodating some restaurants are to your allergies! I remember Maggianos making me a free everything pasta that I created. They sent out a sou chef to talk to me about what I want in my meal. Cheesecake Factory is also good at this as well. You just have to ask!
Also, I don’t know if you know this, you can also call your insurance company to find out if they will pay for formula if or when you decide to stop nursing. I stuck it out for 8 months which was longer than I had originally planned after finding out about his allergies. I probably could have gone on much longer but Christmas was tough! Every meal had some kind of dairy… Anyway, our insurance ended up paying for his Alimentum formula but didn’t back pay the ones we already bought. Only from the dates after we filed the claim. We found out a little too late but it was still worth it since he drank formula until 15 months. That’s when all of his eczema disappeared. And we slowly introduced cow’s milk and he’s been fine ever since. Now, he does have environmental allergies now though and that’s probably genetically related according to his allergist. Most babies will outgrow MSPI around 1 or so and that was the case for us. I hope baby Deer outgrow hers as well. She is so adorable in that picture! Love it!
guest
So thankful for this post. My son has/had MSPI (He’s 2) and I am due in 5 weeks with another baby boy. It was a huge struggle for us to figure out what his deal was as his major symptom was exactly what your daughter’s was… major spit up. It took us 9 months to figure it out… 9 long guilt filled months on my part because I was breastfeeding. We finally went to a GI specialist and they urged us to try Alimentum. After 9 months of questioning my eating habits in regards to what my baby was experiencing… I was over breastfeeding– it was filled with guilt and second guessing. Alimentum was AMAZING. My son is now 2 and I have reintroduced “hidden” dairy and soy as well as trialing yogurt/cheese here and there. I honestly can tell that he still has a small sensitivity to them because every once in a while we get a mucusey stool and his skin is SUPER sensitive to any poop in contact with it but he’s two… and wants to eat what we are eating and what his friends are eating and I just don’t think his symptoms are severe enough to justify eliminating things again. It’s one of those judgement calls we make as moms and although I question it ALL the time, I just feel like I need to go with my gut and let him eat it. But now comes #2… and I am terrified and convinced this one will probably have the same intolerances. Although I know where to buy the food and what I’m looking for, I’m still not looking forward to being on such a strict diet. This post definitely gave me a boost to know that I can do it— and my past experience has helped me know that if I am feeling guilty or stressed all the time, it’s not worth it and that the formula is amazing– or at least it was for my 1st! BIG BIG props to you for #1 — figuring it out so fast and #2–sticking with breastfeeding. It sounds like you have such a positive outlook on it and that makes all the difference! Best of luck in the future with your MSPI journey!
guest
My husband has MSPI and has a gluten intolerance so I’m well aware of those issues and how to cook (I’ve been cooking and baking essentially MSPI and gluten free for over 4 years now)! Fortunately my little miss does not have MSPI or gluten issues (that we know of!), but I am careful with the amount of dairy and gluten I give her (because I will still eat dairy and gluten). Good luck with it, I know how hard it is to live without soy and dairy, especially because soy really is in everything!
guest
My daughter also has a Milk Protein allergy. She can tollerate Soy though. My husband also deployed early on (when she was 3 weeks old). At 8 weeks, I switched my daughter to Soy Formula. I didn’t think it was possible to have a dairy free diet myself as a single mother. Sometimes I wish I would have tried harder, but it was the best decision for her at the time. She became a different, happier baby when I switched her! She didn’t have what I thought was Colic anymore and slept longer! She is now 13 Months and still has the allergy. She is on soy milk and we eat a lot of soy yogurt. She is a happy and growing toddler:-) The Doctor still has hope that she will outgrow it soon, but until then, she is completely diary free.
blogger / persimmon / 1231 posts
@sea_bass: food allergies and intolerances can be so hard to figure out! That sounds a lot like our experience as far as the late onset of blood in her stool and how she had a mellow temperament too. I hope it doesn’t take you long to narrow it down. Great job working to stick with breastfeeding!
Sarah: great job figuring it out! I hope she grows out of it soon too
@erwoo: That’s great to know about the Cheesecake Factory! I have had no luck eating out so far… we’ve just been avoiding it but I miss it so much! And yeah, I’ve heard that some insurances will cover it! I need to check in to that. So far I see us sticking with breastfeeding for a bit longer, but I should call to find that out for if/when we do stop nursing. I’m also contemplating not giving her any milk at all once she weans and just making sure she’s getting fat/protein/calcium from other sources. We shall see!
Emily: Don’t feel guilty! It can be so hard to diagnose, both for parents and doctors alike. I’m so glad that once you got him on some formula that he had such a great turn-around. Hope all goes well with #2!
MamaH: Wow, 4 years, good for you guys! You must have all this down-pat
And yeah, that darn soy! I hope one day it isn’t in so many things like it is now.
Kacie: I’m so happy that switching to soy formula worked well! And good for you for figuring it out so quickly and handling this while your husband was away. I had no idea how hard it would be to have a newborn while having my husband deployed (as I’m sure you know).
pomegranate / 3053 posts
@Mrs. Deer: Yeah, my experience at Cheesecake has been great. We ate there a lot! Also, just as an FYI, if you want to stop nursing and give formula, make sure you start the process to get a prescription from her ped/allergist even before you start giving her formula b/c it could take a few months (took us 3) for you to get a prescription from her ped AND for the insurance to work with your ped for them to cover it. They just have to make sure it is medically necessary. I had United Health Care back then and I’ve heard BCBS also covers it. It was a pain, but Alimentum is quite pricey! For my son, once I noticed he stopped having eczema around his cheeks and that’s when his ped suggested to slowly introduce milk first. And then once he is tolerating milk okay, then slowly introduce soy. He didn’t have any problems at all. Hope your LO won’t either! Most babies outgrow the allergy. Hope yours will too!
guest
After seeing my 3 month old suffer from acid reflux for his entire life we have finally discovered it is due to MSPI. Our Pediatrician has been wonderful and helped immensely in our struggle to figure out what the issue was.
My heart would break every day seeing our little one scream for hours at a time in pain due to the reflux caused by this. I just want to blame myself for not realizing sooner what the issue was. My husband is allergic to Milk Protein as well. I stopped eating dairy for a few weeks but he was still having pain, but 3 days after stopping soy, including all forms of hidden soy, he is like a different child. It is wonderful to see him smile more.
Thank you for this article! It helps to know I am not alone in this.
guest
Thank you for this post. It so mirrors what we have experienced with my second child who is almost 3 months old. I eliminated dairy at 4 weeks but just realized soy is an issue last week. Now I’m trying to figure out if it is alk soy or just the soy proteins.
blogger / persimmon / 1231 posts
Monica – glad it was helpful! I though we only had issues with soy proteins, but now that she’s eating food herself (16 months) I’ve discovered she reacts to soy lecithin and soybean oil too
guest
Thanks for sharing! I just found out my second child has MSPI. So did my first. I am starting back on the diet. I’m nervous because it is so restrictive but I know it will be worth it for my little one! It will make my family eat healthier as well!
guest
I am so thankful for stories like yours! I am on day 5 of an MSPI (and 1 day of wheat-free) diet. It is hard, but my little man is worth it. I felt so guilty because he was just diagnosed at 2 months and I had thought he was just a fussy baby. After just a few days, he is a completely different boy – in a good way! He is happy and smiley and it melts my heart, making my diet more than worth it. Stories like yours give me the extra motivation I need!!!
guest
Our little guy is 3 and a half months and we suspect MSPI. He has always been fussy, gassy and spitty but a few weeks ago he started to throw intense fits every time I tried to breastfeed him. We got him on meds for reflux but I kept wondering what the root cause was. After researching and reading stories like yours I think we are on to something. He has eczema, is up all night with gas (4 to 5 wake ups a night and more when he was newborn), is congested and coughs a lot, poops frequently day and night, and spits up relentlessly. I’m not sure if I have noticed any mucus though, definitely no blood. I eliminated almost all dairy 5 days ago (I didn’t realize my granola bars had dairy) and he has been a much happier baby. Still up all night with gas and still has the occasional back arching crying fit. I eliminated dairy completely and soy yesterday. How long did it your Little Dear to be symptom free? I’m so tired and I really hope this is the fix. Thanks for posting! it is so helpful to read other’s stories to get an idea of what this really looks like in a baby.
blogger / nectarine / 2010 posts
Coming back to this, since I think this is what I’m dealing with over here with P. (Complete with solo mama time, of course!) I need help figuring out what to eat if I’m getting rid of soy too. I’m also going to give up nuts given the almond milk reaction we got this week. Sooooo apples and oranges?
blogger / persimmon / 1231 posts
@Mrs. Stroller: I’m so sorry you’re dealing with this! There’s definitely more options though! These are some snacks I like:
Whole Foods
– Annie’s chocolate bunny grams
– Amy’s dairy free burritos
Trader Joes
– allergen free snicker doodles
– chocolate coconut ice cream
– coconut yogurts
– Tuscan Italian dressing for dip
– lots of their chips and veggie chips are safe
And I never could eat out much but was so happy to find that Chipotle is dairy and soy-free as long as you don’t get cheese, sour cream, or a tortilla (so no burrito but just a bowl).
And you could try a rice or hemp milk instead so that you can still make smoothies or eat cereal (some frosted mini-wheats are dairy/soy-free, Puffins brand too).
Some TJ’s breads are d/s-free and so is Daves Killer Bread (most stores carry it).
I also like buying guacamole from TJs or Costco for dipping veggies and chips to get some healthy fats.
I hope these are some new ideas! Hang in there! You’ll get good at reading labels and discovering new foods.
blogger / persimmon / 1231 posts
Kaily – It does sound a lot like MSPI! Are you working with your pediatrician too? It took LD a good 2 weeks or so. Hang in there mama! I posted a comment above with snack ideas too. Our youngest has it as well and I’m going to do another post soon!
guest
My little girl is 11 months and I have been dairy, peanut, and seafood free for 8 months now……it has been a long hard time! I am just wondering if you had seen a specialist or your regular doctor? We went to our regular doctor but she really did not say much or do any testing. My little is still soo uncomfortable and gassy I am just wondering if I should be doing more also her weight gain is horrible.
blogger / persimmon / 1231 posts
Luann – I’m so sorry you’re dealing with this, I know it can be so tough! With my first we just did everything with her pediatrician, since she really only reacted to milk and soy. With my second she’s had protein intolerance is to many other foods, so we ended up seeing a pediatric G.I. doctor. I think seeing him as well as an allergist was really helpful, especially since we needed to give her an elemental formula. They both had their own gaps in knowledge about these issues, but together were very helpful to see. Do you think you can get a referral? I wish or so, but it seems like there’s no one doctor that totally understands these issues, so I definitely recommend doing as much research on your own as you can too.
guest
I’ve been off dairy for over a month now and have only been off soy for a couple of days now. It’s definitely difficult! Can you tell me what the poops should look like? Yellow and seedy like other breastfed babies?
blogger / persimmon / 1231 posts
Sorry for the late reply Naomi! Yes, that would be good normal poop.
but it can vary in color and consistency as they get older. I’d go based on the mucous decreasing
guest
My baby boy had MSPI, diagnosed at 1.5 months. He had very mucusy poop with tiny bits of blood. I exclusively breastfed so I had to stop eating all dairy and soy, and his poop quickly went back to normal. We tested him at 7 months and he had outgrown it completely! He and I can now eat everything!!!!
To test it, we did soy first, waited a couple weeks, then dairy. Really enjoyed that first Chinese food and pizza! Hang in there breastfeeding moms, you can do it, and you and your kiddo will be totally normal eating out again someday!!
guest
When my daughter almost choked (had to call the ambulance) and had green mucus diapers with blood (and alot), I couldn’t find alot of resources online so I told myself once this was over I was going to share my story etc.
Age 2 weeks – Thick white spit up choking, had to call 911, went to emergency room. This happened 4-5x more times but we knew what to do (always have sucker bulb on hand) so did not have to call in emergency personnel. They said it was probably reflux and put her on zantax in the am and pm. This didn’t seem to help the spit up or thick mucus, but made us feel better, although we had her always elevated for the first 4 months of her life. She always had green weird mucus poop (different than my first child) but my pediatrician was not concerned. I tried to cut out some dairy from my diet around 2 months, as I read it could be the culprit. I didn’t really see a different (although i realized later that i had to really cut out ALL dairy not 98%). Then around 3.5 months, the blood started to appear in her diapers, sometimes specks, sometimes huge streaks. Around 4.5 months, I still wanted to breastfeed (my oldest has real allergies and I wanted to try for a year with my second), but the pediatrician recommended formula and refused to send me to a GI specialist, stating that if i couldn’t fix it by eliminating milk and soy, formula was the only option. We tried it for 4-5 days and then I reverted to breast milk and went soy and dairy free (100% completely). I even tried the complete elimination diet and also didn’t eat eggs, chocolate, nuts, etc. After about 3 weeks, everything was still the same (blood, mucus, etc.) and my pediatrician would not send me to a GI, so I changed pediatricians and my new one sent me to a GI specialist asap. The best thing ever. The GI assumed me that this was ok, that it took at least 4-6 weeks without any soy (including soy lechitian, soy oil) or dairy for their system to rebuild and heal and that some blood was OK. in fact, i showed her pictures of alot of blood in my opinion (several big streaks) and she as not concerned. She said to keep breastfeeding and to try and introduce dairy to her around 9-12 months (but not put it in my diet). In about 6 weeks the blood and green mucus cleared up, and she was able to eat dairy (very small amounts around 11 months) and we introduced soy lecithin and oil and very small amounts around 15 months and she was fine. Moral that i learned is to see a GI specialist when in doubt, they have dietitians there to guide you through what to eat and really know about MSPI and what to do (unlike my experience with my pediatrician) and when to worry and when to not worry. I wish I had done this much sooner.